Managing Complex Neurological Disorders in the Community
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Conference Overview

So what is it that makes a neurological disorder or condition ‘complex’? Perhaps it is the nature of the condition and how it arises or the way that patients' behave? It could be because you don’t often encounter patients with the disorder/condition in your clinical practice? Or is it simply that our understanding and knowledge of the condition and how patients are suffering is limited?!

Whatever the reason, the P-CNS is delighted to be trying to provide some answers and invite you, a curious health professional, to a series of educational talks that will delve into some of the perceived mysteries and issues associated with ‘complex’ neurological conditions, attempting to make them less ‘complex’. By attending this one day conference our objective is to support your clinical skills that will help you address some of the unmet care needs of the people living complex neurological disorders. The recently published NICE guidelines on 'Suspected Neurological Conditions' will feature in the discussions, in order to look at how 'complex' needs of patients can be address and managed in a community setting.

The format for the day will comprise a mixture of presentations and panel discussions with opportunities for delegate to ask questions and network. 

The agenda is currently being developed, but to help with planning your travel, registration will be from 9.30am with the opening session beginning at 10am.


PROGRAMME TOPICS

The programme is currently being finalised but the topics in the spotlight include:

• From obtaining a timely diagnosis to achieving optimal quality of life

• Managing Complex Neurological Conditions and the impact of the new NICE guidelines

• Epilepsy, Parkinson's and Autism - what links them?

• MND: Hope from despair through multidisciplinary care

• Managing the challenges of Complex Epilepsy and subsequent QoL impact

• Uncovering a complex neurological disorder - key signs & symptoms indicating the need for a referral

• How Community Collaboration can Maximise Patient Outcomes 

• When is a neurological presentation not a neurological condition and how to manage the patient?

 

WHO SHOULD ATTEND and WHY?

Whether you work in primary, secondary or community care, the purpose of this event is to address a variety of issues that will help delegates to gain a fuller understanding and become more knowledgeable of some of the complexities of diagnosing and managing the numerous neurological conditions. The talks will be designed to give delegates some practical tips to help optimise care and support a coordinated multidisciplinary approach that supports the quality of life of the patient and their family.

Come and enjoy an engaging day of presentations and networking, while sharing your thoughts and experience with colleagues to develope your clinical skills and knowledge base to optimise the management of 'complex' neurological disorders.












Speakers

Speakers

All presentations will be lead by key experts in managing complex neurological disorders. We are also delighted to have Prof Adrian Williams chairing part of the day. The line up of speakers currently includes:

Dr Adine Adonis, Clinical Specialist Physiotherapist – Neurology & Senior Lecturer Physiotherapy


Dr Manny Bagary, Consultant Neuropsychiatrist, Barberry National Centre for Mental Health, Birmingham

Dr Bagary runs a tertiary epilepsy service in Birmingham which includes a surgical programme, VNS clinic, modified ketogenic diet service for adults and has a particular interest in mental health comorbidity in epilepsy. Dr Bagary is actively involved in epilepsy research and is currently involved in a number of NIHR studies evaluating novel AEDs. Dr Bagary is an elected council member and treasurer of the ILAE-UK Chapter. He is the CRN lead for epilepsy research in the West Midlands.

Dr Daniel E Lumsden (confirmed), Consultant Paediatric Neurologist, Guy's and St Thomas' NHS Foundation Trust and Paediatric Neurosciences, Guy’s and St Thomas' NHS Foundation Trust, London, UK Faculty of Life Sciences and Medicine, King’s College London, London, UK

Dr Lumsden works at the Evelina London Children's Hospital (ELCH) and is the current Chair of the Movement Disorder Specialist Interest Group of the British Paediatric Neurology Association. Daniel's clinical and research work has focussed on the management of movement disorders in childhood. He is one of three Consultants in the Complex Motor Disorder Service at the ELCH which provides a national referral service for Deep Brain Stimulation in Childhood, and is also the clinical lead for the Rett Service at the ELCH. Daniel has a particular interest in improving the recognition of movement disorders in children, and has taught widely on this topic.

Dr Shelly Morris-King (confirmed), Consultant Psychologist

Dr Morris-King is a Consultant Clinical Psychologist working at the Walton Centre NHS Foundation Trust for the Cheshire and Merseyside Rehabilitation Network. The network provides support to individuals with complex physical injury and psychological provision is provided to patients at all stages of their rehabilitation journey from hyper acute care to community rehabilitation. Shelly has worked in a range of services including adult mental health, forensic settings, ABI and complex physical rehabilitation. She leads the wider psychology team across the rehabilitation network and is passionate about supporting patients and their families with psychological adjustment to disability and injury.

Ms Polly Moyer, (confirmed) Co-Founder of Action for MdDS UK

Polly Moyer was born and brought up in Yorkshire, and now lives in Bristol where she campaigns for people with rare conditions and ‘writes for rare’ including http://www.bmj.com/content/353/bmj.i2042 . She is cofounder of Action for MdDS UK – Technology Training Treatment and is also a trained Laughter Yoga facilitator.

Prof Martin Turner (confirmed), Consultant Neurologist

Professor Turner is a consultant neurologist to the John Radcliffe Hospital in Oxford. He has long commitment to the education of medical students, GPs and other specialists in all aspects of clinical neurology. He has particular interest in neurodegenerative disorder investigation and management, and co-directs one of the largest UK tertiary referral centres for motor neuron disease.

Professor Adrian Williams (confirmed) Consultant Neurologist

Prof Adrian Williams is Consultant Neurologist and Professor of Clinical Neurology at the University Hospitals Birmingham NHS Foundation Trust. He was appointed to the NHSE Chair of the Neurosciences CRG, the National Neurosciences Advisory Group and the West Midlands Senate. Prof Adrian Williams is also a GIRFT (Getting It Right First Time) Advisor Neurology and Ambassador for London.



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The Banqueting Suite, Council House, Birmingham B1